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All SMA patients in UK have access to Spinraza

Great news comes from England. Congratulations to TreatSMA who have worked so hard with their patients. NHS said yes to Spinraza as standard therapy and approved it for all patients without age restrictions.

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At last the SMA Community has the answer it has been asking for since NICE started its appraisal almost 17 months ago: NHS England has announced access to nusinersen for all with SMA Types 1, 2, 3a and 3b. It will also be available to pre-symptomatic siblings who, based on their genetics, are very likely to develop SMA. Our thanks to NICE, NHS England and Biogen for this great news, and huge thanks to MDUK, TreatSMA and all in the SMA Community for working so hard on this journey and for your campaign efforts. Read more on our website: https://bit.ly/2Q3jbIS #spinraza #nusinersen #sma #spinalmuscularatrophy #NICE #NHSEngland #decisionreached #agreement #access #Biogen #MDUK #TreatSMA #thankyou #smacommunity #community #teameffort #campaign #campaignefforts #result #smauk #spinalmuscularatrophyuk

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Published inSMASpinraza

13 Comments

  1. Britt Britt

    🙌🙌and the ☀️ shines on horizon for all SMA patients in England.
    They really fought hard and won. 💪 A better life begins for you, hooray and even without age restriction.A great example of how great this organization working. ❤️

    Shameful at the same time for all northern muscle organizations in Scandinavia, which do not support enough their older SMA patients in their fight. 🤬

  2. Bente Bente

    Så sant Britt. 👍

  3. Søren Søren

    Enig Britt 👍👍

    og

    💪🙌 tillykke til UK

    Britt – What are we punished to live in Scandinavia, we should go away to a better country than Denmark Sweden, or Norway which immediately forgets all its patients!

    Søren
    Denmark

  4. Liz Liz

    Next news

    Nice has published the guideline to Spinraza. Please read more.

  5. Anne Anne

    STORA TACK KRAMAR TILL DIG! 💞

  6. Mia Mia

    Congratulation TreatSMA 🙌👏💕

  7. Traudl Traudl

    💐🍀

  8. Mia Mia

    Official Pressrelease Biogen

    BIOGEN’S SPINRAZA® (NUSINERSEN) RECEIVES POSITIVE RECOMMENDATION FROM NICE FOR FUNDING IN THE UNITED KINGDOM FOR THE TREATMENT OF INFANTS, CHILDREN AND ADULTS WITH SPINAL MUSCULAR ATROPHY

  9. Mia Mia

    Q&A
    Answer and question to Spinraza in Uk and what is with North Ireland

  10. Traudl Traudl

    Thank U Mia fr the many upates. .)

  11. Jan Jan

    And now there are some new criteria, Spinraza is not accessible to SOME!

Comments are closed.