All SMA patients in UK have access to Spinraza

Great news comes from England. Congratulations to TreatSMA who have worked so hard with their patients. NHS said yes to Spinraza as standard therapy and approved it for all patients without age restrictions.

View this post on Instagram

At last the SMA Community has the answer it has been asking for since NICE started its appraisal almost 17 months ago: NHS England has announced access to nusinersen for all with SMA Types 1, 2, 3a and 3b. It will also be available to pre-symptomatic siblings who, based on their genetics, are very likely to develop SMA. Our thanks to NICE, NHS England and Biogen for this great news, and huge thanks to MDUK, TreatSMA and all in the SMA Community for working so hard on this journey and for your campaign efforts. Read more on our website: https://bit.ly/2Q3jbIS #spinraza #nusinersen #sma #spinalmuscularatrophy #NICE #NHSEngland #decisionreached #agreement #access #Biogen #MDUK #TreatSMA #thankyou #smacommunity #community #teameffort #campaign #campaignefforts #result #smauk #spinalmuscularatrophyuk

A post shared by SMA UK (@sma_uk) on

Publicerat av

Liz

Att acceptera vad som händer och låt trollen i ljuset, kanske du borde att tro mer på dig själv Liz Photopage Instagram

10 reaktioner till “All SMA patients in UK have access to Spinraza”

  1. 🙌🙌and the ☀️ shines on horizon for all SMA patients in England.
    They really fought hard and won. 💪 A better life begins for you, hooray and even without age restriction.A great example of how great this organization working. ❤️

    Shameful at the same time for all northern muscle organizations in Scandinavia, which do not support enough their older SMA patients in their fight. 🤬

  2. Enig Britt 👍👍

    og

    💪🙌 tillykke til UK

    Britt – What are we punished to live in Scandinavia, we should go away to a better country than Denmark Sweden, or Norway which immediately forgets all its patients!

    Søren
    Denmark

Lämna ett svar

E-postadressen publiceras inte. Obligatoriska fält är märkta *