The 31-year-old, however, suffers from a rare neuromuscular disorder (SMA) , which are characterised by loss of lower motor neurons and progressive muscle wasting,
Bettina is already in a very critical condition.
For Bettina to live on, she urgently needs a treatment withh Spinraza.
But Bettina’s health insurance does not want to pay for it, because this medicine is too expensive
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Bettina on FaceBook
#Treatment #Spinraza #Hope #life quality