HHS Secretary Alex Azar today approved the recommendation that newborn screening for spinal muscular atrophy be implemented nationwide

The approval of this recommendation is an important step toward our goal of having every baby born in the United States screened for SMA,” said Jill Jarecki, PhD, chief scientific officer at Cure SMA. “Newborn screening and early treatment will save the lives of babies born with SMA. SMA is currently the leading genetic cause of death for infants under two years of age, but we now have an historic opportunity to change that

Read more CureSMA

Publicerat av

Mia

Mia

Mother of three childrens. One of the twins my eldest son had SMA Typ II -III. He passad away and spread his wings into the sun . He lived 3 years and seven months. Fly my sweet little honeybee🧚‍♂️🦋 fly my little Honeybee 🐝