Vad är Myosit
#21
Study Evaluating Efficacy and Safety of Octagam 10% in Patients With Dermatomyositis (Idiopathic Inflammatory Myopathy) (IIM) Phase 3 . Last updated 19 January 2019

Clinical Trials


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#22
S100A11 is elevated in inflammatory myopathies and reflects disease activity and extramuscular manifestations in myositis

https://doi.org/10.1016/j.cyto.2018.12.023

Institute of Rheumatology and Department of Rheumatology, 1st Faculty of Medicine, Charles University, Prague, Czech Republic
b
Department of Pathology and Molecular Medicine, 2nd Medical School and University Hospital Motol, Charles University, Prague, Czech Republic
c
Technology Centre of the Czech Academy of Sciences, Prague, Czech Republic


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"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#23
A case report 
Dermatomyositis associated with omalizumab therapy!


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#24
Myositis and Genetics



Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#25
Derzeitige Studien
https://www.clinicaltrials.gov/ct2/resul...d=myositis
https://www.myositis.org/research/clinic...ug-trials/


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#26
Eine ganz interessanten Studie dürfte die von Jonhns Hopkins sein mit Tofacitinib (Xeljanz)
https://www.hopkinsmyositis.org/news/

Recruitment is underway in Baltimore for a research study of tofacitnib (a.k.a. Xeljanz) for refractory dermatomyositis - Eine Studie in Baltimore ist voll in Gange mit Xeljanz

Dermatomyositis (DM) is a rare, progressively debilitating disorder that affects the muscle (causing weakness) and skin (causing a rash) in most affected patients. DM can also involve multiple body systems including the lungs, joints, gut and heart. Therapy for DM involves administering corticosteroids, typically with an immunosuppressive agent, but treatment options for refractory DM are very limited. This research is being done to determine the safety and effectiveness of a Janus kinase (JAK) inhibitor called Tofacitinib in adults with active, treatment-refractory dermatomyositis. The investigators will also look for specific biomolecular changes in blood, skin, and muscle when it is exposed to Tofacitinib
https://clinicaltrials.gov/ct2/show/NCT03002649
#NCT03002649


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#27
Having some new cohort studies

  1. Outcomes of Pregnancy in Women With Inflammatory Myositis
    https://insights.ovid.com/crossref?an=00...0000-99069
  2. Responsiveness to Change of 5-point MRC
    https://content.iospress.com/articles/jo.../jnd180358
  3. Myositis Ossificans Traumatica of the Scapholunate Ligament
    Myositis ossificans progressiva and Myositis ossificans circumscripta
    https://www.thieme-connect.de/products/e...38-1661354

#Idiopathic inflammatory #myopathies #myositis #Myositis ossificans progressiva

Vi (Mia + Jag) är föräldrar till ett pojke med SpinalMuskelAtrofi typ I-II
Att jobba som frilansarkitekt i U.S, Norge, Sverige, Danmark, Tyskland

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Låt den början, bli riktigt bra idag

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#28
Adult Idiopathic Inflammatory Myopathies
OMERACT 2018 Modified Patient-reported Outcome Domain Core Set

Myositis and Baker cyst


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#29
Very interesting with the Baker cyst. rheumatoid Arthrits patients get often the same tissue. I've  already had some problems with behind of knee, baker cyst are not only caused by the irritation of muscle, tissue irritation, they arise a lot in knee joint disease, or generally in inflammatory processes in the knee - so aswell with rheumatism. Thanks Mia.. Wink

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#30
Der Medizinische Wissenschaftlichen Kongress in Göttingen findet am 11. Mai 2019 statt.

Die Anmeldung zum Patiententag ist nun offen 

Themen sind unter anderem 
  • Myositis
  • Mitochondriale Myopathien
  • Poliomyelitis
Weitere Details zum Programm findet Ihr beim DGM


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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