Senaste från Norden
#11
With what right are allowed to prohibit those treatment. In my opinion, Denmark should no longer be in the EU, it violates human rights. Sad

Same way citizens who successfully integrate, they lose their right to live there. NOT good for a eu country
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#12
In fact it is a special country with strange priorities to its patients. Sad


Close the topic for upcoming reports. Smile


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#13
Wink 
Hvis du leder efter hjælpemidler eller andre ting.

Besøg RCFM

Liz Photopage
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Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#14
Sæt din underskrift og hjælp om at sikre lægers frie ordinationsret af medicin som er afvist som standardbehandling af Medicinrådet

Quote:Medicinrådets etablering, herunder de fastelagte principper for Medicinrådets arbejde, gør det i praksis vanskeligt for små patientgrupper, dvs. patienter med sjældne sygdomme, at få anbefalet ny medicin som standardbehandling af Medicinrådet. Det skyldes, at medicin til patienter med sjældne sygdomme ofte vil være omkostningsfuld sammenholdt med mulighederne for at skabe et evidensgrundlag for den merværdi medicinen kan give den enkelte patient, der lever op til Medicinrådets krav. Som nævnt vil medicinens pris skulle indgå i Medicinrådets begrundelse for om et lægemiddel skal tages i brug som standardbehandling. Konkret kan der henvises til, at Medicinrådet har afvist at anbefale ”Spinraza” til en væsentlig gruppe af patienter med SMA 2, samt hele patientgruppen med SMA 3 (muskelsvindssygdom). Medicinrådet har i den forbindelse iagttaget principperne for rådets arbejde.

Liz Photopage
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Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#15
Att få ett personlig assistans

Funksjonshemmedes organisasjoner holder pusten i frykt for hva Gunilla Malmborg vil gjøre med brukerstyrt personlig assistanse i Sverige. I midten av desember legges den omstridte LSS-utredningen fram.

Liz Photopage
Instagram

Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#16
Ventetider for at få en handicapbil til 84 uger
  • Odder - 84 uger
  • Stevns - 84 uger
  • Fredericia - 73 uger
  • Jammerbugt - 72 uger
  • Guldborgsund - 72 uger
  • Varde - 19 uger
  • Silkeborg - 17 uger
  • Albertslund - 16 uger
  • Vejle - 15 uger
  • Thisted - 15 uger

© Kilde Danmarks Statistik  Arrow  SØG  Handicapbil Tag et kig under  Arrow HANDBIL1 Bevilget støtte til handicapbil efter område og enhed


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#17
Yes to low taxes, yes to luxury cars, no to the health systems. Denmark health system develops very negative. Patients like lung patients are denied their immunotherapy. C
https://propatienter.dk/nyheder/1747-ove...gevel.html

Children with SMA still have no therapy, although one is available. Doctors are not allowed to support expensive therapies. You must adhere to the recommendations of Medicinrådet! Welcome to a bureaucracy that you do not have to understand.
Anyway > We are talking about a country that is into  EU.
https://sundhedspolitisktidsskrift.dk/me...ennem.html

https://www.ft.dk/samling/20181/udvda/SU...535015.pdf?

Liz Photopage
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Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#18
THUMBSDOWN Sad

You wrote well. A health care system which is financed by taxes needs to be changed carefully. The government that has ruled the country for 2 years is not doing a good job in my eyes. That should not happen. The Danes should never forget, they are a small country with not much population like Sweden. We can afford to cut taxes, but not Denmark. Maybe they should think about creating a completely new healthcare system without this Medicinrådet
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#19
Those of the medical council follow only the instructions of the government, there will be an expenditure budget. Save, save, do not allow expensive drugs. It does not matter how many patients report and complain.

I'm sure this young man will be heard, as soon as he's out of the door, he's forgotten!
https://muskelsvindfonden.dk/nyheder/oli...tiansborg/?

Two years endless debates, no success.
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#20
Quote:Yes to low taxes, yes to luxury cars, no to the health systems. Denmark health system develops very negative. Patients like lung patients are denied their immunotherapy. C
https://propatienter.dk/nyheder/1747-ove...gevel.html

Children with SMA still have no therapy, although one is available. Doctors are not allowed to support expensive therapies. You must adhere to the recommendations of Medicinrådet! Welcome to a bureaucracy that you do not have to understand.
Anyway > We are talking about a country that is into  EU.
https://sundhedspolitisktidsskrift.dk/me...ennem.html

[Image: Dislike.jpg]

Quote:Those of the medical council follow only the instructions of the government, there will be an expenditure budget. Save, save, do not allow expensive drugs. It does not matter how many patients report and complain.

I'm sure this young man will be heard, as soon as he's out of the door, he's forgotten!
https://muskelsvindfonden.dk/nyheder/oli...tiansborg/?

Two years endless debates, no success.

It will again be a small flame that has gone out after the day. I am sure that nothing will change there. I'm sorry to say.

When the next gene therapy comes out, it will be stopped too. There will never be a future for these kids in Denmark, but really never


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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