Lyssna på Nina som samtalar med Maja av podden Sjukt Liv
#11
Lyssna på podd "Det Räcker nu"..



och det räcker mig idag också. Jag är i stress och måste  göra så mycket förändringen.

Önskar er alla en trevlig dag njut av solen  Smile

Liz Photopage
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Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#12
The fight for an assistant has every country, not just Sweden. Savings are always made to the weakest!

Bente
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#13
Venner


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#14
I visit this meeting as well and gave my support. We have the right to assistants. Our child fulfills all criteria. The jungle of bureaucracy is tiring. But I also have to say that Sweden has a good system, in fact we can not complain. I find it catastrophic in some other countries. A Sami mother Sofi Smile
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#15
Assistans är frihet! Rädda LSS!
https://www.skrivunder.com/assistans_ar_..._radda_lss

Hjälp oss att rädda liv- Tack Liz Heart

Mathilda
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#16
Quote:Assistans är frihet! Rädda LSS!
https://www.skrivunder.com/assistans_ar_..._radda_lss

Hjälp oss att rädda liv- Tack Liz Heart

Mathilda

Kära Mathilda
Våra användare och jag har redan skriva under  Venner  Heart Tack så jätte mycket för länken

Liz Photopage
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Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#17
Lyssna nu avsnitt 7 



Nina und Maja pratar om att finna sig i ett laglöst land där regler och sociala koder inte finns

NT-rådet säger ja till Spinraza
https://liz-sma-blog.eu/showthread.php?tid=19

Hur många som fått tillgång till nusinersen (Spinraza) i Sverige – (Nationella behandlingstart)

https://liz-sma-blog.eu/showthread.php?tid=19&highlight=Sverige

Nusinersen (Spinraza) rekommenderas enbart för barn och ungdomar under 18 i Sverige
https://liz-sma-blog.eu/showthread.php?tid=21&highlight=Emma


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Liz Photopage
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Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#18
I do not appreciate any country thats in the EU, is ticking more correctly. How crazy our democracy has become ,we are seeing ourselves again. The respirator of my son is broken. Because the doctor did not write down the correct Register-No
and code for this device, we need an prescription,

The company refuses to give us the device. Meanwhile, I had to give our child to the intensive care unit because they have the device. This morning I called again. Meanwhile, our doctor has completed everything correctly.

You see Maja, Nina, we parents are constantly fighting against blockade. Liz you too! Undecided
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#19
Beautiful podcast, good job : Triple-Thumbs Triple-Thumbs

I find out, I have become much bolder after our child was born with the Niemann-Picks type C, I appreciate that Smile


https://www.socialstyrelsen.se/ovanligad...jukdomtypc

Nina and Maja were too. With each task, you grow. We are currently fighting for our heated humidifier for respirator

Liz I desperately looking for the last topics to SBMA, my girlfriend would need some documentation!
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#20
Thank you ladies for all the sweet comments. Sure, sure everyone has their own struggle in this society. 

Considering that I was fighting health insurance for nine months (2017) for my new wheelchair.
 Nine months where I was not mobile. 
Nine months where I could not leave the house, because the wheelchair the old one was broken. It was a nightmare that didn't want to end, at Christmas the gift came in letter form. Hurray I get it.. Yeah

That's why it's important to fight for your rights. Because when you give up, you sink into the depths of the devil's throat. Any victory over something new makes you incredibly strong, right!Wink

Send all my positive thoughts and vibs to you Traudl and Anne..  Heart

Anne please check out into topic,
https://liz-sma-blog.eu/showthread.php?tid=216
I have all the information there. Excuse me, Mia had forgotten to publish.. Wink

Thank again for the information material about NPC1. I hope your daughter keeping well.. Heart

Kram
Liz

Liz Photopage
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Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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