Näringsbehandling av patienter med spinal muskelatrofi
#1
hallo zusammen,

ich vermisste unseren informativen Sondenthread um Sondenernährung und Rezept.

Es gibt verschiedene Arten von Sonden.
Die kurzzeitige Transnasale Sonden, bis hin zu Dauerhafte Sonden wie die PEG.

Informationen bei www.nutricia.de

Eine Seite die ein Muss ist
www.lecker-ohne.de

Hipp Sondennahrung
https://www.hipp.de/hipp-sonden-trinknah...dennahrung
Rezeptpflichtig) liefern nur innerhalb Deutschland, Österreich, Schweiz

NG Sonden bei Kindern
https://www.treatsma.uk/2019/01/nasogastric-intubation

Uppdateras
Extends the topic title
1.02.2019 /Mia

#PEG Tube #Mic-Key
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#2
Lieber Peter, 

entschuldige dies war einer der Themen den wir bedauerlicherweise vergessen haben umzuziehen.
Wir danken dir vom ganzen Herzen für die hilfreichen Links  Shy

Liebe Grüsse 
Mia


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#3
Nutrition Basics Guide

CureSMA has an informative booklet , which focused on the nutrition principles for SMA, potential complications, feeding tubes, and more.

Thank you Peter Smile

Vi (Mia + Jag) är föräldrar till ett pojke med SpinalMuskelAtrofi typ I-II
Att jobba som frilansarkitekt i U.S, Norge, Sverige, Danmark, Tyskland

Shy Varje morgon börjar en ny del i ditt liv
Låt den början, bli riktigt bra idag

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#4
Heart Grüne Smoothies Rezepte beim ZDF

Liz Photopage
Instagram

Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#5
Näringsbehandling av patienter med spinal muskelatrofi
https://liz-sma-blog.eu/showthread.php?tid=9&pid=631#pid631


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#6
Tusen tack  Heart

Liz Photopage
Instagram

Att acceptera vad som händer
och låt trollen i ljuset, kanske du borde att tro mer på dig själv
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#7
Question to the parents here. Our child often has air in the stomach, our daughter can not burp.
How often do you opening PEG and left out air?
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#8
Hello David

On the cone can connect a bladder syringe, normal syringe or empty water bag. The air must then be withdrawn again, this one can often win gastric secretions. In children, only use normal syringes up to a maximum of 10 ml.

After each meal, should the tube be rinsed with water. We leave out air several times a day, up to 5 times.

Hope this help you!
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#9
Helga has already written a lot.
We vent air after each meal - read the nice instructions and all four hours
https://www.feedingtubeawareness.org/wp-...tGuide.pdf
https://www.feedingtubeawareness.org

How to Vent Air from the Stomach Via G-tube

Some children get uncomfortable when there is air in the stomach . You can vent air out of the stomach every few hours as needed . You may want to vent before each feeding, around the time of each diaper change, or after feeding . Children who receive fundoplication surgery may need to be vented more often . You will learn how often your child needs to be vented .
In order to vent, you need a large syringe with the plunger removed, a cup, and towel because sometimes stomach contents comes out with the air . If your child has a button-style tube, you will need an extension set (preferably a straight/bolus extension) .

Note that the Bard Button has a special extension set for venting called a decompression tube .
Insert the open syringe into the end of the long tube or into the extension set, then unclamp the tube . Gently pushing on the stomach (or raising your child’s legs to the chest) will help to move the air towards the tube and allow it to move out . Food may also come out . You should let it slowly run back in when finished .
This is often referred to as re-feeding . The Feeding Tube Awareness Foundation has videos on different venting techniques .

These are available on line . For more continuous venting, even while feeding, you can use a Farrell valve bag .

#feedingtube #mic-key


Proffession: Jag arbetar som rehabkonsult  (hjälpmedel)
"I am don't losing my hope",I am strong for my son. #CURESMA #NEVERGIVEUP Heart

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#10
Our doctor once said you can give your child everything about the feeding tube.
Is it important that it is pureed meals, High-energy diet to avoid malnutrition.
Our child got diarrhea from the normal tube feeding. My wife cooks therefore rich in vitamins, light and tasty. Meanwhile, we also use the recipes from Liz with the sweet potato soup. Very nice that we are such fantastic people here to help each other. Love this forum. Thank you Liz Triple-Thumbs
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