Cure SMA Canada will not stop fighting until all patients are approved for treatment!

CureSMA released that Biogen has resubmitted to CADTH and INESSS as an agreement was not reached with our provincial governments and the pCPA through the negotiations. —> News about CureSMA Canada

CURE SMA Canada > Fighting for treatments

Tick, Tock, Tick Tock the clock runs out. A day turns into a week, a week becomes a month, months turn into years – Years these people do not have. Children around the world are struggling with their families for an access to the only treatment for Spinal Muscular Atrophy,… Att fortsätt läsa

Adgang til Spinraza for alle danske børn og voksne

Vi deler gerne linket. Det er katastrofalt, at børnene over 6 år er for gammel til Spinraza. Danmark er det eneste land i Europa, der udelukker sine SMA patienter. Tillgång till Spinraza för alla danska barn och vuxna Jag vill dela länken. Det är verkligen katastrofalt att barn över 6… Att fortsätt läsa

This is the new SMA: Boy with SMA Type 2 is running, standing , sitting, lifting alone under Spinraza

This is a miracle 💓 Boy with SMA Type 2 is running, standing and sitting, lifting alone. This is only possible with early treatment from birth with Spinraza. This is the new face from spinal muscular atrophy (SMA) 💪 #AdgangTilSpinrazaForAlle #AccessToSpinraza Typical brothers playing. But can you believe one of… Att fortsätt läsa