Muskeln für Muskeln: Run for SMA its Best!

Ob zu Fahrrad oder zu Fuß. Die Sportler von Muskeln für Muskeln zeigen Herz für die schwächsten. Conny und Kuno starten bei der TorTour de Ruhr. Die beiden Sportler haben eine beachtliche Strecke von 230 Kilometer vor sich. Seht die schöne Bilder

Pünktlich sind unsere beiden SMAider Conny Karlstedt und Kuno Cornfine heute morgen bei der TorTour de Ruhr gestartet…

Gepostet von Muskeln für Muskeln am Samstag, 19. Mai 2018

Wir wünschen schöne Pfingsten 🌷☀️

SMA Awareness > Video recap of the Cure SMA Day on the Hill

On Thursday, April 26, Cure SMA traveled with more than 70 spinal muscular atrophy advocates to Washington D.C. to meet with over 60 congressional offices. The advocates represented 24 states and D.C. The purpose of the advocacy day was to advance life-changing opportunities for our community through SMA research and newborn screening.

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➡️ Photo Gallery of Cure SMA Hill Day 2018

Happy Mothers Day – Julie Cini has finally acheived her dream

This is the story of a strongest mother whose life was not so good for Julie, she lost her husband. Later her daughters to the Genetic Killer number #1, that´s called Spinal Muscular Atrophy or SMA. It’s the story of founder Julie Cini of SMA Australia. After many many years there is finally a treatment there. Spinraza is just the beginning, new treatments are under development

Happy Mothers day for all SMA Mothers 💕 especially to Julie 🌷💕