SMA Awareness > Video recap of the Cure SMA Day on the Hill

On Thursday, April 26, Cure SMA traveled with more than 70 spinal muscular atrophy advocates to Washington D.C. to meet with over 60 congressional offices. The advocates represented 24 states and D.C. The purpose of the advocacy day was to advance life-changing opportunities for our community through SMA research and… Att fortsätt läsa

Newborn Screnning for Spinal Muscular Atrophy

Germany wants to make it a duty, Minnesota wants to introduce it All babies born in Minnesota are now being screened for spinal muscular atrophy (SMA) unless their parents opt out of the newborn screening, the Minnesota Department of Health recently announced. SMA is the leading genetic cause of early… Att fortsätt läsa