On Thursday, April 26, Cure SMA traveled with more than 70 spinal muscular atrophy advocates to Washington D.C. to meet with over 60 congressional offices. The advocates represented 24 states and D.C. The purpose of the advocacy day was to advance life-changing opportunities for our community through SMA research and newborn screening.
Germany wants to make it a duty, Minnesota wants to introduce it
All babies born in Minnesota are now being screened for spinal muscular atrophy (SMA) unless their parents opt out of the newborn screening, the Minnesota Department of Health recently announced. SMA is the leading genetic cause of early childhood death in the United States.