Spinraza NOT approved in England and Wales – SMA patients bitterly disappointed

What a catastrophic decision for more than a thousand people affected by spinal muscular atrophy in England and Wales. The National Institute for Health and Care (NICE) decided NOT to recommend the use of Nusinersen (Spinraza®) as an NHS treatment for spinal muscular atrophy in England and Wales. After Denmark,… Att fortsätt läsa