Lymphedema in patients with spinal muscular atrophy

Question from Larissa

I have a question. I know that SMA is a whole body disease like rheumatoid arthritis. My daughter recently had a lymphatic tissue on her instep. First it was always when it got too warm temperatures, now it has it all year round. Our physiotherapist says we should do a lymphatic drainage. Others say that does not bring much, it keeps coming back. Our daughter has Type I on SMA. Do you have any help?

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Liz

Until those day, was my kiss of death been stronger than those of the devil. I like to ride through hellfire with him ,when I come out victorious afterwards. I'm strong and proud rheumatoid arthritis warrior Följ mig, tack! Liz - Fotoblogg Spelblogg

4 tankar om “Lymphedema in patients with spinal muscular atrophy”

  1. Hi Larrissa,

    thank you for stopping here.
    Lymphatic drainage is a good treatment. Lymphedema is caused by the lack of movement in legs and foot. It would be good if you always move the feet of their daughter, make some workouts before she going into the bed. When sitting in a wheelchair, feet should be stored frequently in a high position. Avoid tight socks, or socks with rubber band. These having a high risk to develop a lymphedema.

    Compression therapy is another alternative. The feet are wrapped with a bandage, this is a special technique.
    Nutrition Arrow Salt only 5mg a day, switch to sea salt or Himalayan salt. Then something that many people underestimate.
    Those who drink a lot of fluids do not automatically store more water in the body – on the contrary. A sufficient amount of about 2 liters per day «flushes» through the kidneys and keeps them healthy. They also help to flush the toxins out of the body.
    If you have limphedema permanently, inflammation and infections will occur. These are the pillars of a good limphedema treatment.
    You will still get some answer from our , stay tuned..

  2. This little gym promote the drainage of water. Stretch and bend feet. Move toes to stimulate the pumping action of the feet.

    Daily cold washings on the legs, with a damp sponge or coarse linen cloth, promote metabolism and circulation.

  3. Hello Larissa

    Continuous movement is the secret. The water retention can escape through the kidneys.

    Our children can not move their feet themselves. I recommend the Motomed Trainer, we use it ourselves with our son.
    https://www.motomed.com/produkte/motomed-letto2/

    He automatically moves his legs and arms. We had no problems with swollen feet, water retention to this day. I do a lot of manual craft, all stocks, shoes I knit myself. I avoid synthetic textile, because our children like to sweat more through the disease

Innlegget er stengt for innspel.