Wonder-drug Spinraza approved in Ireland. Many parents burst into tears when they heard this news. Their children have access to Spinraza. Currently only children have access.
Updated 11/6/19
Adults have no access to Spinraza. Because the efficacy trial is still running, HSE has said no. The study will be finished in 2023. In some countries, such as Germany, USA, adults have access and they are making spectacular progress. Read more