Rarediseaseday 2020: Raise Awareness of Cystic Fibrosis and Spinal Muscular Atrophy

February 29th we celebrate Rare Disease Day.

The face behind Liz SMA Blog www.liz-sma-blog.eu
Thats me – Liz Andersson, 53 age, living with rheumatoid arthritis since my childhood
I show my face for you & friends

I spread awareness this year of people, where are no longer among us.
🌈🦋In memories ✝︎16.06.2019
to ours beloved user/girlfriend Sofi from Finland , who passed away last year. They lost her fight agains of cystic fibrosis at the age of 23.

You always live in my heart, not just on this special day, always 💕💞 🦋🌈In memories of the childrens with spinal muscular atrophy (SMA). Especially Helga whose son passad away last year at the age of 4. I think of my dear girlfriend Mia , who has a son with X-linked SMA (SMAXL) . An even more severe form of #sma #smaxl #linkedspinalmuscularatrophy 🌅

🦋🌅Sometimes the greatest compfort.
Is to be wrapped securley in our memories 🦋🌅
*Till minne av människor de vi förlorat*

Publisert av

Liz

Until those day, was my kiss of death been stronger than those of the devil. I like to ride through hellfire with him ,when I come out victorious afterwards. I'm strong and proud rheumatoid arthritis warrior Följ mig, tack! Liz - Fotoblogg Spelblogg

Ein tanke om “Rarediseaseday 2020: Raise Awareness of Cystic Fibrosis and Spinal Muscular Atrophy”

  1. Niemann–Pick type C

    History of a patient with this symptom too rare disease day

    Geschichte einer Patienten mit diesem Symptom zu seltenen Tag
    https://www.instagram.com/p/B80zCCTg-9g/

    Rarediseaseday 2020: Raise Awareness of Cystic Fibrosis and Spinal Muscular Atrophy

    Vincent lever med den sällsynta diagnosen Angelmans syndrom

    FDA godkänner första behandling för barn med sällsynta sjukdomar som orsakar inflammation i små blodkärl

    Roy leva med Kennedys sjukdom (SBMA)

    Scott Sjölander som har Aperts syndrom

Innlegget er stengt for innspel.