Scandinavia in general offered limited access to Spinraza to its SMA patients. Sweden, Norway, Finland offer older patients over 18 years no access to Spinraza. Here too SMA patients suffer from these miserable decisions. Few countries like Germany offer Spinraza For all their SMA patients.
It looks like Danish SMA patients can never get treatment.
It is also a very bad sign of upcoming medication, such as Zolgensma, Risdiplam. These drugs are also used in the treatment of spinal muscular atrophy.
In the past, this agency has rejected expensive drugs such as Ataluren in the treatment for Duchenne muscular dystrophy (DMD).
What do you think about the latest Danish decision. Only members have access
Medicinsk behandling för SMA i Danmark, Sverige, Finland, Norska