ENGLAND: Mary Glindon frågade statsministern varför hon inte tillgång till Spinraza

ENGLAND: Mary Glindon frågade statsministern varför hon inte tillgång till Spinraza Läs mer TreatSMA Spinraza Not approved in England and Wales Spinraza EAP Program closes in November for newly diagnosed SMA Typ 1 babies **Well done Mary 👍❤️**

New Method of NUSINERSEN/Spinraza Delivery with intrathecal catheter (SIC) system, give more SMA Patients Access and reduce at same time costs five- to ten-fold

and this is shown by a new study from Clinc for Special Children in Strasburg the method has already been developed and tested there. STRASBURG, PA- A new report has identified an alternative method to deliver nusinersen to patients with spinal muscular atrophy (SMA) using a subcutaneous intrathecal catheter system… Att fortsätt läsa

ICER Institute announce Draft Document of Study on AVXS-101 and Nusinersen/Spinraza for Spinal Muscular Atrophy Treatment

BOSTON, August 22, 2018 – The Institute for Clinical and Economic Review (ICER) has posted a Draft Scoping Document outlining a planned review of the comparative clinical effectiveness and value of AVXS-101 (AveXis) and nusinersen (Spinraza®, Biogen) for the treatment of spinal muscular atrophy (SMA). The scoping document will be… Att fortsätt läsa