Awareness of Cystic Fibrosis: Improve Utilization of Palliative Care among Adults

and I must everyday to think to our beloved Sofi, she passad away a few weeks ago on the rare disease Cystic Fibrosis.

For me it is a strong need to share awareness of this really rare disease. That’s good to know that palliative care is an important component, please read the latest study.

Who knew Sofi, knows how important all this was. I will always carry it in my heart. ❣️🦋🌈