Categories
Nyeste

Verna: Medicinrådets maktdemonstrasjon er for hele landet og pasientene for dyrt

Det finst ingen utdrag, fordi innlegget er verna.

Categories
Spinraza

Danmark: Belgium saves Magnus life with SMA Typ 1

Magnus with SMA Type 1  is 18 years old and lives permanently on respirator. This was one reason why the Medcinrådet did not give him access to Sprinraza. Magnus» parents were able to enroll at the last minute in the EAP program in Belgium. Since those days, travel Magnus with his parents every quarter of […]