A therapy must be secured. If you must to paying for your own social treatment with your own financial means, then it’s a poker game. Out of pure desperation, many parents and patients do that.
Spinraza is still not available to all SMA Folks. Especially adults, teenagers over 18 years struggle so hard. Magnus 18 years old from Denmark with SMA type 1 has paid his own treatment for more than 1 year.
Now a monastery from Denmark has donated to Magnus, so that he can continue his therapy
Please consider a treatment with Spinraza must be a lifetime